Skip to content
24/7 Support Line: 0333 996 4802
← Work, uni & schoolRelated guide: Work & school — staying in, going back, and what you're entitled to →

Knowing When to Let Go Isn't Giving Up

Matthew BrainMod · 3 Aug, 23:43

One of the hardest decisions I've ever had to make was stepping away from the business I built. For years, I ran a logistics company. It wasn't just my job—it was something I'd worked incredibly hard to build, and I was proud of what I'd achieved. As my muscular dystrophy progressed, I found it harder and harder to keep up. The fatigue became overwhelming, and by the end of each working day I had very little energy left for anything else. I'd spend so much of my energy trying to get through work that there was nothing left for my family, my hobbies, or even looking after myself. Like many people, I kept telling myself I could push through it. I didn't want to admit that things had changed. I saw stepping back as failing. Then I reached my breaking point. I developed a serious infection that resulted in me spending two weeks in hospital. My healthcare team explained that pushing my body so hard hadn't helped and that constantly running myself into the ground had likely made it much harder for my body to cope. Lying in that hospital bed gave me a lot of time to think. I realised that I wasn't living anymore—I was simply surviving from one working day to the next. Every bit of energy I had was going into keeping my business going, while my own health was getting worse. That's when I made the decision to step away. Looking back now, I realise that making that decision wasn't giving up—it was recognising my limits and putting my health first. Since leaving work, something unexpected has happened. My pain levels have reduced, my fatigue is much more manageable, and I can actually enjoy life again. I have more energy for day-to-day activities than I did when I was working because I'm no longer using all of my energy just trying to get through the working day. I want to be really clear though: this isn't a post telling people to give up work. If you're able to work and it gives you purpose, independence, and enjoyment, that's fantastic, and I genuinely hope you're able to continue for as long as you want to. But if your condition reaches the point where working is doing more harm than good, and you have to make the difficult decision to stop, please don't see it as a failure. There can be so much guilt attached to leaving work, especially if you've always been independent or have built something from the ground up. Society often makes us feel that our value comes from our job, but our worth isn't defined by our employment. Sometimes the strongest thing you can do is admit that your circumstances have changed. It takes far more courage to say, "I can't keep doing this anymore," than it does to keep pretending everything is fine. If you do reach that point, know that you're not alone, and you have absolutely nothing to be ashamed of. Looking after yourself isn't giving up—it's giving yourself the best chance to enjoy the life you have. Has anyone else had to make difficult decisions about work because of muscular dystrophy? Did you reduce your hours, change careers, or stop working altogether? What helped you make that decision? Looking back, would you have done anything differently? I'd really like to hear your experiences, because I know this is something many of us struggle with but rarely talk about.

Sign in to reply.